New FAQ brings together guidance for different user needs
FEGA Sweden has added a frequently asked questions page to help researchers, support staff, and organisations find the guidance most relevant to them.
14 Jul 2026
Secure sharing of sensitive human research data from Sweden
Secure sharing of sensitive human research data from Sweden
FEGA Sweden is Sweden’s node in the Federated European Genome-phenome Archive, supporting discovery, submission, and controlled access to sensitive genetic and phenotypic data. Access is granted by the relevant Data Access Committee (DAC), in line with applicable legislation, enabling approved international reuse.
What FEGA Sweden offers
Support for submitting, discovering, and accessing sensitive human research data.
Submit
Follow practical guidance on preparing data and metadata, including compliance checks and secure submission workflows.
Discover
Find datasets and metadata published via the Swedish node, with links to the EGA Catalogue for full records and next steps.
Access
Access requests are typically initiated via the EGA Catalogue, reviewed by the dataset’s Data Access Committee (DAC), and delivered securely once approved.
Enable submission from your organisation
Before researchers at your organisation can submit data for which the organisation is responsible to FEGA Sweden, we work together to establish the legal, administrative, and practical arrangements needed for secure submission and access handling.
This includes agreeing roles, workflows, responsibilities, and relevant legal and GDPR arrangements before the first submission.
Organisations already onboarded include Uppsala University, Lund University, and the Swedish Childhood Tumor Biobank. We are also working with additional organisations to complete onboarding.
Onboarding overview
- Contact us to scope needs and timelines
- Agree roles, workflows, and responsibilities
- Clarify legal, GDPR, and policy setup
- Carry out a first submission with guidance
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