Secure sharing of sensitive human research data from Sweden

Secure sharing of sensitive human research data from Sweden

FEGA Sweden helps Swedish research organisations store sensitive human research data in Sweden and share them securely with approved researchers. Public descriptions of the data can be found through the European Genome-phenome Archive (EGA).

Access requests are reviewed and decided by the organisation responsible for the data, through its established access process.

Start a submission Discover data

What FEGA Sweden offers

Support for submitting, discovering, and accessing sensitive human research data.

Submit

Follow practical guidance for preparing your data and its public description, including checks and secure submission steps.

Submission overview

Discover

Find data made available through FEGA Sweden, with links to full records and access instructions in EGA.

Browse the catalogue

Access

Access requests start in EGA and are reviewed by the organisation responsible for each dataset. Approved files are delivered securely.

Access overview

Enable submission from your organisation

Before researchers at your organisation can submit data for which the organisation is responsible to FEGA Sweden, we work together to agree who does what and set up the legal, practical, and GDPR-related details needed for secure submission and access requests.

This includes agreeing roles, ways of working, responsibilities, and relevant legal and GDPR arrangements before the first submission.

Organisations already onboarded include Uppsala University, Lund University, and the Swedish Childhood Tumor Biobank. We are also working with additional organisations to complete organisational onboarding.

Organisational onboarding Contact the team

Organisational onboarding overview

1. Contact us to discuss needs and timelines
2. Agree roles, ways of working, and responsibilities
3. Clarify legal, GDPR, and access-rule setup
4. Carry out a first submission with guidance

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