FEGA Sweden handles first data access requests
FEGA Sweden has taken another step towards enabling reuse of sensitive human research data by handling its first data access requests.
13 Mar 2026
Secure sharing of sensitive human research data from Sweden
Secure sharing of sensitive human research data from Sweden
FEGA Sweden is Sweden’s node in the Federated European Genome-phenome Archive, supporting discovery, submission, and controlled access to sensitive genetic and phenotypic data. Access is granted by the relevant Data Access Committee (DAC), in line with applicable legislation, enabling approved international reuse.
What FEGA Sweden offers
Support for submitting, discovering, and accessing sensitive human research data.
Submit
Follow practical guidance on preparing data and metadata, including compliance checks and secure submission workflows.
Discover
Find datasets and metadata published via the Swedish node, with links to the EGA Catalogue for full records and next steps.
Access
Access requests are typically initiated via the EGA Catalogue, reviewed by the dataset’s Data Access Committee (DAC), and delivered securely once approved.
Enable submission from your organisation
Before researchers at your organisation can submit data to FEGA Sweden, we work together to establish the legal, administrative, and operational arrangements needed for secure submission and access handling.
This includes agreeing roles, procedures, and relevant compliance arrangements ahead of the first submission.
Organisations already onboarded include Uppsala University, Lund University, and the Swedish Childhood Tumor Biobank, with additional organisations currently in progress.
Onboarding steps
- Contact us to scope needs and timelines
- Align roles and responsibilities
- Establish Data Processing Agreement (DPA)
- Pilot a first submission end-to-end
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