About FEGA Sweden

Introduction

FEGA Sweden is a Swedish service for securely storing and sharing sensitive human research data. As part of the Federated European Genome-phenome Archive (FEGA), we enable researchers to store data in Sweden in a way that supports the requirements of the General Data Protection Regulation (GDPR). Data in FEGA Sweden are shared through controlled access: an access request must be reviewed before files are made available. Using FEGA Sweden is free of charge for users and organisations.

FEGA Sweden provides a Swedish route for storing sensitive data files in Sweden and making public descriptions of the data findable through the EGA website. This setup matters for Swedish organisations that need to assess where sensitive personal data are stored, which processing agreements apply, and who makes access decisions.

Our mission

We enable sharing of personally identifiable data resulting from Swedish biomedical research projects.

Increasing amounts of human-related data are generated in Swedish biomedical research projects. FEGA Sweden is a national resource for storing, accessing, and sharing these data, a capability that was previously missing in Sweden. We follow the FAIR data principles to help make data easier to find, access under the right conditions, combine, and reuse.

The organisations behind FEGA Sweden

FEGA Sweden is hosted by the National Bioinformatics Infrastructure Sweden (NBIS), which is legally part of Uppsala University. NBIS forms the bioinformatics platform at SciLifeLab and constitutes the Swedish node of the European organisation ELIXIR.

Partners and initiatives