Onboarding organisations
To deposit data in FEGA Sweden, the organisation responsible for the data must first be onboarded. Onboarding establishes the legal, administrative, and operational arrangements needed for secure submission and access handling.
This page is intended for organisations that want to enable submission to FEGA Sweden, such as universities, biobanks, and other research organisations handling sensitive human research data.
The FEGA Sweden team guides each organisation through the onboarding process. We help define roles and points of contact, align procedures for submission and access handling, and support the organisation through the practical steps needed to get started.
What onboarding covers
- Roles and points of contact, such as submitters, Data Access Committee (DAC) representatives, and administrators
- Governance and operational procedures for data deposition and access handling
- Legal and compliance alignment, including a Data Processing Agreement (DPA) where applicable; see Complying with GDPR
The exact setup depends on the organisation and the type of data involved, but the aim is always the same: to ensure that submission and access management are clear, secure, and workable in practice before the first dataset is prepared.
Onboarding steps
- Introductory meeting to scope needs and timelines
- Alignment on roles, responsibilities, and contacts
- Establishment of a Data Processing Agreement (DPA), where applicable; see Complying with GDPR
- A first submission carried out with guidance from the FEGA Sweden team
In practice, onboarding is usually iterative. Some steps can proceed in parallel, and the timeline depends on local governance, legal review, and readiness for a first submission.
Organisations already onboarded
The following organisations are already onboarded:
- Lund University
- Uppsala University
- The Swedish Childhood Tumor Biobank (Barntumörbanken)
We are also currently working with additional organisations to bring them onboard.
Data Processing Agreements with additional organisations
In addition to the organisations already onboarded for submission, FEGA Sweden has established Data Processing Agreements (DPAs) with several other organisations; see Complying with GDPR.
A DPA is usually part of onboarding, but it does not on its own mean that an organisation is fully onboarded for data deposition. Full onboarding also requires agreed roles, contacts, and operational procedures for submission and access handling.
Get started
If your organisation would like to start onboarding, contact the team to discuss scope, responsibilities, and next steps.